I'll be sure to shoot you a funeral invite
F Cancer
Chemo one day in
The take home ball of poison that is infusing at 5ml/hr started out the size of a large orange. It's in a little blue fanny pack they gave me that might fit around one of my thighs.
I hung it on the bed post to sleep, and used a wedge pillow to prevent my rolling over.
It came with a chemical spill kit in case something happens and it comes loose or leaks.
Nausea is uncomfortable but manageable alternating meds ondatseron and porozhegh.
I'm trading quality of life for length of life. I'm not sure how many times I'll do it.
One day of first infusion done. Tomorrow at this time I'll get to turn in the ball and then it's 12 days off.
Not sure how long the side effects will continue on the days off.
The take home ball of poison that is infusing at 5ml/hr started out the size of a large orange. It's in a little blue fanny pack they gave me that might fit around one of my thighs.
I hung it on the bed post to sleep, and used a wedge pillow to prevent my rolling over.
It came with a chemical spill kit in case something happens and it comes loose or leaks.
Nausea is uncomfortable but manageable alternating meds ondatseron and porozhegh.
I'm trading quality of life for length of life. I'm not sure how many times I'll do it.
One day of first infusion done. Tomorrow at this time I'll get to turn in the ball and then it's 12 days off.
Not sure how long the side effects will continue on the days off.
I think I need to bedazzle you a little fanny pack.
It could say something like PIHB
It could say something like PIHB
Poison
Inside
His
Ball
Inside
His
Ball
any means for coping with this chemo shit?
I read a lot, and got out my old .mp3 player, and listened to favourite music, slept a lot when I was going through it.
I read a lot, and got out my old .mp3 player, and listened to favourite music, slept a lot when I was going through it.
So far I'm just doing my normal TV YouTube StarCraft rotation but less comfortably.
One day after having Chester the First removed.
I'm still feeling nausea. Missed my early afternoon anti nausea and barely made it through a hour long phone call with my high school bestie around 3. Right at the end started retching, but only a small amount of bile.
My gut is producing foul odor/taste that hopefully only I smell. It's like I drank a big ol glass of bad milk or ranch.
I'd rate today as a 6.5/10.
I'm still feeling nausea. Missed my early afternoon anti nausea and barely made it through a hour long phone call with my high school bestie around 3. Right at the end started retching, but only a small amount of bile.
My gut is producing foul odor/taste that hopefully only I smell. It's like I drank a big ol glass of bad milk or ranch.
I'd rate today as a 6.5/10.
Well I can’t smell it.
When was high school? Class of 94 here
When was high school? Class of 94 here
jar the smell for the xmas exchange
feel better plz
feel better plz
jars of smell
my favorite christian band
my favorite christian band
man, i was not paying attention to what thread i was in
wow
wow
WOW
wow
WOW
turn upside down and send 5x or smol penits
butterknife said:
turn upside down
ur thinking of jars jackson
jars of buttmud
WayGroovy said:
Imma bottle a burp just for you
it'll go right next to robs sleep breath jar
Infusion Week 2
Very similar side effects. Nausea, mostly controlled with alternating ondanareron and prochlorperazine.
This morning I pulled a handful of hair out. Not quite as much as you see in media, but more than a few strands. A small handful.
My fingers and fingernails are developing dark spots.
Simple things like mild cat scratches are taking weeks to heal up. Had a sore knee for a solid week after sitting on my crossed leg for a half hour.
The smell of my urine is absolutely the worst during and a few days after the infusion.
I'm a bit down. Trying to keep myself going. I've been printing stuff, and working on my arcade cabinets, when I'm feeling up to it.
Very similar side effects. Nausea, mostly controlled with alternating ondanareron and prochlorperazine.
This morning I pulled a handful of hair out. Not quite as much as you see in media, but more than a few strands. A small handful.
My fingers and fingernails are developing dark spots.
Simple things like mild cat scratches are taking weeks to heal up. Had a sore knee for a solid week after sitting on my crossed leg for a half hour.
The smell of my urine is absolutely the worst during and a few days after the infusion.
I'm a bit down. Trying to keep myself going. I've been printing stuff, and working on my arcade cabinets, when I'm feeling up to it.
I say, lean into the urine thing. Go ahead and have a big plate of asparagus too. See how bad you can get it
a bit down is not what i imagine id be feeling in the face of all this bullshit. I'm really sorry youre going through it.
out of curiosity
what's the least helpful or unwelcomed platitude or approach to the subject of your disease/treatment that you've received?
what's the most?
out of curiosity
what's the least helpful or unwelcomed platitude or approach to the subject of your disease/treatment that you've received?
what's the most?
and you can go ahead and discount ghoasts stinky pp obsession. we all just have to sort of tolerate that
I'd say the least welcomed was ivermectin recommendation. I try to give all homeopathic advice the same emotional response as I give thoughts and prayers; The giver means well and wishes me well within their worldview. I'm just a scientific study medical recipient, thank.
And... I'm gonna die. There's no way to sugar coat it. It might not be this year, but it might. It's been 4 years and 4 months since my diagnosis. Plenty of people with access to way more care than I've had lasted less time since their stage III diagnosis. My bonus time has been a blessing.
Physical hugs are my most welcomed form of care, followed closely by digital.
And a couple of orgies now and again don't hurt.
This one time we went out and I saw an old fella go into the stall after me. He flushed immediately and came back out. Stood there with his hands on his hips, head down. Took a shoulder heave of a breath and went back in.
My biggest hope out of all of this is that my talking about it encourages people to get checked if they have any signs or symptoms, and to not take crap from the medical system. If anyone reads or hears of my journey and decides to get checked, and they find polyps and are successfully removed with follow-up monitoring, then I've added time to someone's dash.
And... I'm gonna die. There's no way to sugar coat it. It might not be this year, but it might. It's been 4 years and 4 months since my diagnosis. Plenty of people with access to way more care than I've had lasted less time since their stage III diagnosis. My bonus time has been a blessing.
Physical hugs are my most welcomed form of care, followed closely by digital.
And a couple of orgies now and again don't hurt.
This one time we went out and I saw an old fella go into the stall after me. He flushed immediately and came back out. Stood there with his hands on his hips, head down. Took a shoulder heave of a breath and went back in.
My biggest hope out of all of this is that my talking about it encourages people to get checked if they have any signs or symptoms, and to not take crap from the medical system. If anyone reads or hears of my journey and decides to get checked, and they find polyps and are successfully removed with follow-up monitoring, then I've added time to someone's dash.
I lost dad to Covid. A month later my mom started needing an oncologist and didn’t last a year. Lost father in law in between. I think I’m still kinda broken mentally but holding things together with resin. So what’s up with this orgy?
Oh
When I got stage IV, the wife asked what was left on my bucket list.
Two chicks at the same time man
We celebrated our second orgiversary a couple of weeks ago. Apparently we're both freaks.
When I got stage IV, the wife asked what was left on my bucket list.
Two chicks at the same time man
We celebrated our second orgiversary a couple of weeks ago. Apparently we're both freaks.
Big digital hug to you and yours, and a digital Eiffel Tower to keep on the orgy theme.
As far as something to recommend to you awkwardly that you could maybe keep your eye on is the group Sellas.
My brother is heavily invested in it and tells the family all about it all the time.
They consistently have trials for various types of cancers, looks like nothing that fits the bill for you yet, but they do several new trials to expand it each year.
But they do good work, and one current trial has been extended because there have been so many more survivors than the original trial period projections, with little to no side effects.
https://sellaslifesciences.com/clinical-trials/#expanded
I've also looked up the list of currently recruiting trials in Texas through clinicaltrials.gov, since you mentioned MD Anderson; I forget if that's your actual location.
There's 100 on there with my vague description, you could maybe get more out of it, or narrow it down, if you haven't already looked it all up yourself yet.
Not saying not to put faith in the 'not a good candidate for trials' line from the hospital, but as you've mentioned, I wouldn't fully expect anyone to put in all the extensive legwork or to not overlook things to truly figure that all out for anyone.
A trial also may have started looking for participants since, or may not be the best fit, but still willing to take you in.
https://clinicaltrials.gov/search?locStr=Texas&country=US&cond=Colorectal%20Cancer%20Metastatic&aggFilters=status:rec,studyType:int&viewType=Card&state=Texas
As far as something to recommend to you awkwardly that you could maybe keep your eye on is the group Sellas.
My brother is heavily invested in it and tells the family all about it all the time.
They consistently have trials for various types of cancers, looks like nothing that fits the bill for you yet, but they do several new trials to expand it each year.
But they do good work, and one current trial has been extended because there have been so many more survivors than the original trial period projections, with little to no side effects.
https://sellaslifesciences.com/clinical-trials/#expanded
I've also looked up the list of currently recruiting trials in Texas through clinicaltrials.gov, since you mentioned MD Anderson; I forget if that's your actual location.
There's 100 on there with my vague description, you could maybe get more out of it, or narrow it down, if you haven't already looked it all up yourself yet.
Not saying not to put faith in the 'not a good candidate for trials' line from the hospital, but as you've mentioned, I wouldn't fully expect anyone to put in all the extensive legwork or to not overlook things to truly figure that all out for anyone.
A trial also may have started looking for participants since, or may not be the best fit, but still willing to take you in.
https://clinicaltrials.gov/search?locStr=Texas&country=US&cond=Colorectal%20Cancer%20Metastatic&aggFilters=status:rec,studyType:int&viewType=Card&state=Texas
I do appreciate your updates WG
Thank you for sharing
Thank you for sharing
🫂
i guess i was expecting more "oh u poor thing i can't believe yadda yadda yadda" and "are u scared you must be scared" type shit
didn't expect "try ivermectin" at all
i don't think i would have a response appropriate for that one lol
____
for me, (having not been delivered life altering medical news up to now, but being intimately adjacent to it), some people do the "omg that's terrible news!! How horrible! " And sit there looking like the gatdam scream mask while you explain traumatic shit with which you've likely come to some fractional level of okayness.
i get it - they think that reaction conveys their deep and genuine care or something. But it really feels like a slap in the face and some salt in the wound. Yes, it's understood to be a horrible event or diagnosis and yes it's not good to hear - but do i need that reminder right now?
alternatively - big fan of hugs and a quiet, calm listener. maybe the occasional "that makes sense" and "i understand".
anyways, we're all just a bunch of awkward nerve endings.
didn't expect "try ivermectin" at all
i don't think i would have a response appropriate for that one lol
____
for me, (having not been delivered life altering medical news up to now, but being intimately adjacent to it), some people do the "omg that's terrible news!! How horrible! " And sit there looking like the gatdam scream mask while you explain traumatic shit with which you've likely come to some fractional level of okayness.
i get it - they think that reaction conveys their deep and genuine care or something. But it really feels like a slap in the face and some salt in the wound. Yes, it's understood to be a horrible event or diagnosis and yes it's not good to hear - but do i need that reminder right now?
alternatively - big fan of hugs and a quiet, calm listener. maybe the occasional "that makes sense" and "i understand".
anyways, we're all just a bunch of awkward nerve endings.
New glasses today too. Haven't rocked the thick frames since the 90s.
Yes, the shape of your head is pleasing.
Maybe a little too pleasing.
Maybe a little too pleasing.
Oh lort the back side view 🫣
I look like that customer from Bob's burgers
If you can place sunglasses on back of head that would be appreciated 😎
That elephant seal is dead.
F
Yr
I
F
Yr
I
Bamboozled said:
If you can place sunglasses on back of head that would be appreciated 😎
That made me laugh Groovy 😄
is that crazy frog
ra da dinnng dingdingding
baaaahhhhh
baaaahhhhh
I can't go to Casa Bonita now because my wife thinks I'm gonna try to orgy with you or something. thanks a lot.
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